EICHORCondition: Endometriosis · Sponsor: University of Edinburgh
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Approximately 1.5 million people in the UK, and 200 million globally live with endometriosis, and it is estimated to affect 1 in 10 women of reproductive age. Endometriosis is a chronic pain condition where the lining of the uterus (endometrium) grows in areas outside the uterus. This can cause patients a range of symptoms including severe pain, fatigue, irregular periods, infertility and gastrointestinal symptoms. There is a clear unmet need for early diagnosis and more effective pain management for people who suffer from endometriosis. Endometriosis is a heterogeneous disease in terms of symptoms, trajectory, and indicated therapeutic course, which highlights the need to develop personalised/targeted approaches for effective longitudinal management which are acceptable and accessible to patients and their health care team. The goal of this study is to accelerate discovery and advance data-driven research into endometriosis diagnosis and treatment by collecting large, multimodal, longitudinal data. To achieve this goal, the investigators plan to deliver a longitudinal cohort study. Approximately 3000 UK individuals with endometriosis will be invited over a 24-month period to self-report symptoms that include, pain, menstrual cycle, painkiller use, sleep, exercise, diet and bowel habits via a bespoke ENDO1000 mobile app. A cohort of 1000 women will be asked to complete more in-depth questionnaires asking about endometriosis history, quality of life and treatments. This coh…
This description comes directly from the study's public registry record.
Ann M Doust, DipN · +4478910643488 · ann.doust@ed.ac.uk
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INCLUSION CRITERIA 1. Aged 16 or over 2. Participants who confirm that they have received a clinical diagnosis of endometriosis (based on MRI, ultrasound or laparoscopy) within the last 10 years 3. Living within the UK 4. Willing and able to consent to installing and using the mobile ENDO1000 app on their smartphone or use our web-based equivalent. EXCLUSION CRITERIA 1. Pregnant 2. Known severe coagulation disorder 3. Known active Hepatitis B/C and/or HIV (due to Royal Mail restrictions on biospecimen postage)
Reproduced word-for-word from the public registry record — the study team can answer questions about it.
| University of Edinburgh | Edinburgh, United Kingdom | Recruiting |
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Source record: clinicaltrials.gov/study/NCT07240883