EICHORCondition: Spinal Muscular Atrophy (SMA) · Sponsor: Newcastle-upon-Tyne Hospitals NHS Trust
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Adult SMA REACH is a data collection study aiming to gain a better understanding of the impact of standards of care and new treatments on the natural history of Spinal Muscular Atrophy (SMA). This study is sponsored by The Newcastle upon Tyne Hospitals NHS Foundation Trust. Adult SMA REACH is funded by Biogen and Roche. Currently, there are three drug treatments available for SMA in the UK: Zolgensma, Nusinersen and Risdiplam. Zolgensma is the only approved drug - Nusinersen and Risdiplam are currently available as part of Managed Access Agreements (MAA).
This description comes directly from the study's public registry record.
Adult SMA REACH Team · +4401912418610 · nuth.adultsmareach@nhs.net
There is no obligation to join — the study team can answer your questions about taking part.
Always discuss trial participation with your own doctor first.
Inclusion Criteria: * Age ≥16 years (when patients will begin the transition process to adulthood) * Genetically confirmed diagnosis of 5q SMA * Signed informed consent to take part in the study Exclusion Criteria: * Non-5q SMA * No genetic confirmation * \<16 years of age * No signed informed consent or consent withdrawn
Reproduced word-for-word from the public registry record — the study team can answer questions about it.
| University Hospitals Birmingham NHS Foundation Trust | Birmingham, United Kingdom | Recruiting |
| North Bristol NHS Trust | Bristol, United Kingdom | Recruiting |
| Cambridge University Hospitals NHS Foundation Trust | Cambridge, United Kingdom | Recruiting |
| Cardiff and Vale University Health Board | Cardiff, United Kingdom | Recruiting |
| NHS Greater Glasgow and Clyde | Glasgow, United Kingdom | Recruiting |
| Bradford Teaching Hospitals NHS Foundation Trust | Leeds, United Kingdom | Recruiting |
| The Walton Centre NHS Foundation Trust | Liverpool, United Kingdom | Recruiting |
| University College London Hospitals NHS Foundation Trust | London, United Kingdom | Recruiting |
| King's College Hospital NHS Foundation Trust | London, United Kingdom | Recruiting |
| St George's University NHS Foundation Trust | London, United Kingdom | Recruiting |
| Newcastle-upon-Tyne Hospitals NHS Trust | Newcastle upon Tyne, United Kingdom | Recruiting |
| Nottingham University Hospitals Trust | Nottingham, United Kingdom | Recruiting |
+ 6 more locations — full list on the registry record.
This study lists sites in the areas below. Each link shows other recruiting studies near that city, from the public registry record.
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This page is independently generated by Eichor from the public ClinicalTrials.gov record and re-synced daily. It is not the sponsor's official website unless claimed. Nothing here is medical advice; eligibility is always determined by the study team — talk to your own doctor first.
Source record: clinicaltrials.gov/study/NCT06978985