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Study identifier: NCT04127006 Synced from ClinicalTrials.gov · August 06, 2026
● Study status: Completed

Rate of Progression in EYS Related Retinal Degeneration

Condition: Retinitis Pigmentosa · Eye Diseases  ·  Sponsor: Jaeb Center for Health Research

PhaseN/A
Planned participants103
Who can joinAll sexes, 18 Years to no upper limit
Healthy volunteersNo

About this study

The overall goal of this project funded by the Foundation Fighting Blindness is to characterize the natural history of disease progression in patients with EYS mutations in order to accelerate the development of outcome measures for clinical trials.

This description comes directly from the study's public registry record.

Talk to the study team

No contact information is available for this study as per the public registry record.

Always discuss trial participation with your own doctor first.

Locations (19)

University of California, San FranciscoSan Francisco, California, United States
Colorado Retina AssociatesDenver, Colorado, United States
Vitreo-Retinal AssociatesGainesville, Florida, United States
University of Miami: Neuro-ophthalmology DepartmentMiami, Florida, United States
Emory Eye CenterAtlanta, Georgia, United States
Wilmer Eye Institute at Johns HopkinsBaltimore, Maryland, United States
Massachusetts Eye and EarBoston, Massachusetts, United States
Kellogg Eye Center, University of MichiganAnn Arbor, Michigan, United States
Duke University Eye CenterDurham, North Carolina, United States
Oregon Health Science University Casey Eye InstitutePortland, Oregon, United States
University of Pittsburgh Medical CenterPittsburgh, Pennsylvania, United States
Retina Foundation of the SouthwestDallas, Texas, United States

+ 7 more locations — full list on the registry record.

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