EICHORCondition: HIV · Cancer · Chronic Granulomatous Disease · Sponsor: National Cancer Institute (NCI)
Background: \- There are very few documents to help young adults living with advanced cancer discuss their concerns and end-of-life preferences. A new document, Voicing My CHOiCES, allows young adults to explain what kind of care they would want if they became unable to communicate or make medical decisions on their own. Researchers want to study if this document is helpful. Objective: \- To study if Voicing My CHOiCES(TM) can reduce anxiety, improve sense of support, and improve communication about advanced care planning. Eligibility: \- Adults 18 to 39 years old being treated for cancer. Design: * Participants will answer questions about their age, sex, employment, religion, health, and marital status. They will also complete several brief questionnaires: 1. General Anxiety Short Form 2. Peace, Equanimity and Acceptance in the Cancer Experience 3. Functional Assessment of Social Support 4. Quality of Communication 5. Prior Communication about Advanced Care Planning * Then a health care professional will introduce Voicing My CHOiCES . Participants will review the document and comment on parts they find relevant. They will also say if any important items are missing. Participants will complete 3 pages of the document with the assistance of a health care provider. They will be asked for positive and negative observations. * The second stage of the study will take place about 1 month later. Participants will repeat the brief questionnaires listed above. They w…
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| Children's Hospital of Orange County | Orange, California, United States | — |
| Childrens National Medical Center | Washington D.C., District of Columbia, United States | — |
| Moffitt Cancer Center | Tampa, Florida, United States | — |
| The Johns Hopkins Hospital | Baltimore, Maryland, United States | — |
| National Institutes of Health Clinical Center | Bethesda, Maryland, United States | — |
| Dana Farber Cancer Institute | Boston, Massachusetts, United States | — |
| Children's Hospital at Montefiore | The Bronx, New York, United States | — |
| Rhode Island Hospital (Lifespan) | Providence, Rhode Island, United States | — |
| Cook Childrens Hospital | Fort Worth, Texas, United States | — |
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Source record: clinicaltrials.gov/study/NCT02108028