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Condition: Von Hippel Lindau Syndrome Synced from ClinicalTrials.gov · July 28, 2026

Recruiting studies: Von Hippel Lindau Syndrome

Studies currently listed as recruiting on the public registry for this search term. Each page explains the study in plain language, with locations and the study team's contact details. Clinicians: generate a printable list for your patient →

Von Hippel-Lindau (VHL): Clinical Manifestations, Diagnosis, Management and Molecular Bases of Inherited Renal and Other
Phase N/A · 1 location(s) · National Cancer Institute (NCI) · NCT00001238Data Collection Protocol for Patients With Von Hippel Lindau Disease
Phase N/A · 1 location(s) · M.D. Anderson Cancer Center · NCT05955014A Study of HS-10516 in Patients With VHL Syndrome Associated Tumors
Phase 1 · 1 location(s) · Jiangsu Hansoh Pharmaceutical Co., Ltd. · NCT06553339Mechanisms of Somatic Mutation and Tumor Initiation in Pre-malignant Kidney Tubule Cells
Phase N/A · 1 location(s) · IRCCS San Raffaele · NCT06194669Familial Investigations of Childhood Cancer Predisposition
Phase N/A · 1 location(s) · St. Jude Children's Research Hospital · NCT03050268Natural History and Management of Von Hippel-Lindau (VHL) Associated Pancreatic Neuroendocrine Tumors
Phase 2 · 1 location(s) · National Cancer Institute (NCI) · NCT04074135Extension Study for Participants in Studies That Include Belzutifan (MK-6482-043/LITESPARK-043)
Phase 3 · 49 location(s) · Merck Sharp & Dohme LLC · NCT07405164Genetic Bases of Neuroendocrine Neoplasms in Mexican Patients
Phase N/A · 3 location(s) · Universidad Nacional Autonoma de Mexico · NCT06523582MyVHL: Patient Natural History Study
Phase N/A · 1 location(s) · Joshua Mann, MPH · NCT0374998018F-T2 PET/CT Imaging for CAIX Positive Solid Tumors
NA · 1 location(s) · Peking University First Hospital · NCT07557225Real-World Effectiveness and Pharmacogenetics of Belzutifan in VHL Syndrome: The BELIEVE-VHL Trial
Phase 2 · 1 location(s) · José Claudio Casali da Rocha · NCT07167329Belzutifan/MK-6482 for the Treatment of Advanced Pheochromocytoma/Paraganglioma (PPGL), Pancreatic Neuroendocrine Tumor
Phase 2 · 84 location(s) · Merck Sharp & Dohme LLC · NCT04924075CAT-VHL Exploring the Role of Carbonic Anhydrase IX as Diagnostic and Theranostic Target in Von-Hippel Lindau Disease
Phase 2 · 1 location(s) · IRCCS Ospedale San Raffaele · NCT07171905Screening for Endolymphatic Sac Tumours (ELSTs) in Von Hippel-Lindau (vHL) Patients
Phase N/A · 1 location(s) · Marie Luise Bisgaard, MD · NCT02420067Propranolol and Von Hippel-Lindau Disease
NA · 1 location(s) · Assistance Publique - Hôpitaux de Paris · NCT05424016National Eye Institute Biorepository for Retinal Diseases
Phase N/A · 1 location(s) · National Eye Institute (NEI) · NCT01496625Institutional Registry of Rare Diseases
Phase N/A · 1 location(s) · Hospital Italiano de Buenos Aires · NCT06573723
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This page is independently generated by Eichor from the public ClinicalTrials.gov record and re-synced daily. It is not the sponsor's official website unless claimed. Nothing here is medical advice; eligibility is always determined by the study team — talk to your own doctor first.