Condition: Rare Diseases · Amyloidosis · Sarcoidosis · Sponsor: Hospital Italiano de Buenos Aires
The goal of this observational study is to create a single macro registry system with data collection on common clinical features, grouping the different rare diseases (RD). Moreover, the specific goals are to generate an alert system for possible cases of RD with data from the electronic medical record, to describe the occurrence of RD in the evaluated population, to characterize the population, to describe patterns of diagnosis and treatment of RD present at the time, and to explore patient-reported outcomes.
This description comes directly from the study's public registry record.
Maria Lourdes Posadas Martinez, PhD · +54 11 49590200 · maria.posadas@hospitalitaliano.org.ar
Paula Scibona, MD · +54 11 49590200 · cepi@hospitalitaliano.org.ar
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| Hospital Italiano de Buenos Aires | Buenos Aires, Buenos Aires, Argentina | Recruiting |
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Source record: clinicaltrials.gov/study/NCT06573723