A Long-Term Observational Study of Patients With Fucosidosis
Condition: Fucosidosis · Sponsor: JCR Pharmaceuticals Co., Ltd.
About this study
The purpose of this observational research study is to learn more about the natural history of fucosidosis, its symptoms, and how it develops over time. This study intends to collect information from participants diagnosed with fucosidosis; however, this study does not include any medication or treatment other than the usual medical care provided to study participants. The information collected in this study will be used to help understand the disease characteristics of fucosidosis; with this information potentially being able to help design future studies and treatments for this disease. There is currently no approved treatment for patients with fucosidosis. The study consists of 2 parts: a) Part A - retrospective data collection, and b) Part B - prospective data collection.
This description comes directly from the study's public registry record.
Talk to the study team
JCR Pharmaceuticals Co., Ltd. · +81 797 328582 · clinical_development@jp.jcrpharm.com
Always discuss trial participation with your own doctor first.
Locations (16)
| Children's Hospital of Orange County | Orange, California, United States | Recruiting |
| University of Minnesota Health | Minneapolis, Minnesota, United States | Not Yet Recruiting |
| Indira Gandhi Institute of Child Health, Department of Pediatric Neurology | Bengaluru, India | Not Yet Recruiting |
| Erasmus University Medical Center | Rotterdam, Netherlands | Not Yet Recruiting |
| La Rabta Hospital | Tunis, Tunisia | Not Yet Recruiting |
| National Institute Mongi-Ben Hamida of Neurology of Tunis | Tunis, Tunisia | Not Yet Recruiting |
| Cukurova University, Faculty of Medicine | Adana, Turkey (Türkiye) | Not Yet Recruiting |
| Istanbul University Cerrahpasa Medical Faculty Hospital | Istanbul, Turkey (Türkiye) | Not Yet Recruiting |
| Marmara University Pendik Training and Research Hospital | Istanbul, Turkey (Türkiye) | Not Yet Recruiting |
| Ege University, Faculty of Medicine | Izmir, Turkey (Türkiye) | Not Yet Recruiting |
| Dokuz Eylül University Hospital | Izmir, Turkey (Türkiye) | Not Yet Recruiting |
| Royal Belfast Hospital for Sick Children | Belfast, United Kingdom | Not Yet Recruiting |
+ 4 more locations — full list on the registry record.
Follow this study
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Source record: clinicaltrials.gov/study/NCT07615400