Condition: Hereditary Angioedema With C1 Esterase Inhibitor Deficiency · Hereditary Angioedema - Type 1 · Hereditary Angioedema - Type 2 · Sponsor: Istituti Clinici Scientifici Maugeri SpA
The aim of this study is to conduct an in-depth analysis of the Burden of Disease (BoD) perceived by patients with Hereditary Angioedema (HAE), through daily prospective observations based on Ecological Momentary Assessment (EMA) via digital surveys and standardised questionnaires. Participants will answer online survey questions about their perceived burden of disease for 8 consecutive weeks. The main hypothesis is that daily prospective observation (EMA) will reveal a higher and more fluctuating burden of disease compared to traditional retrospective scales, providing a more accurate representation of the impact of HAE on patients' daily lives.
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| Istituti Clinici Scientifici Maugeri, Milan, Milan 20138 | Milan, Italy | Recruiting |
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Source record: clinicaltrials.gov/study/NCT07448181