Condition: Sickle Cell Disease · Sponsor: St. Jude Children's Research Hospital
This prospective mixed-method interview study aims to qualitatively describe the beliefs, attitudes, and informational needs around gene therapy for rare pediatric diseases among patients and parents of children with a rare disease targeted for treatment using gene therapy techniques. Using learned insights, the team will develop an online platform providing educational content and patient decision aids for patients and their families.
This description comes directly from the study's public registry record.
Liza-Marie Johnson, MD, MPH, MSB · 888-226-4343 · referralinfo@stjude.org
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| St. Jude Children's Research Hospital | Memphis, Tennessee, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT05810181