Condition: Mucopolysaccharidosis I · Mucopolysaccharidosis II · Mucopolysaccharidosis IV A · Sponsor: University of California, San Francisco
This is an international prospective and retrospective registry of patients with Lysosomal Storage Diseases (LSDs) to understand the natural history of the disease and the outcomes of fetal therapies, with the overall goal of improving the prenatal management of patients with LSDs.
This description comes directly from the study's public registry record.
Billie Lianoglou, MS · 415-476-2461 · billie.lianoglou@ucsf.edu
Emma Canepa, MS, CCRP · 415-476-7255 · Emma.Canepa@ucsf.edu
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| University of California San Francisco | San Francisco, California, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT05619900