Condition: Rett Syndrome · Sponsor: Rett Syndrome Research Trust
The Rett Global Registry is a fully remote, global, caregiver-reported registry to collect information about caring for a loved one with Rett syndrome. In addition, caregivers have the ability to track and graph their loved one's symptoms and care strategies over time, store information for central access, and opt-in to complete medical record consolidation and summary. Qualified researchers and therapeutic developers may request access to de-identified aggregate information to further Rett research, or assist with clinical development planning to facilitate and expedite more effective clinical trials.
This description comes directly from the study's public registry record.
Jana von Hehn, PhD · 203-445-0041 · support@rettglobalregistry.org
Jennifer Reynolds · support@rettglobalregistry.org
Always discuss trial participation with your own doctor first.
| Rett Syndrome Research Trust | Trumbull, Connecticut, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT04900493