Condition: Neuronal Ceroid Lipofuscinosis · Neuronal Ceroid Lipofuscinosis CLN1 · Neuronal Ceroid Lipofuscinosis CLN2 · Sponsor: University of Rochester
This study aims to assess the natural history of Batten disease (Neuronal Ceroid Lipofuscinosis) by obtaining information about the motor, behavioral, and functional capabilities of individuals with Batten disease. This study will also refine and validate the Unified Batten Disease Rating Scale (UBDRS) as a clinical rating instrument for Batten disease.
This description comes directly from the study's public registry record.
Amy Vierhile, RN PNP · (585)275-4762 · amy_vierhile@urmc.rochester.edu
Always discuss trial participation with your own doctor first.
| University of Rochester | Rochester, New York, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT01873924