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Study identifier: NCT07625579 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

Collaboration for Down Syndrome Progress (CDP)

Condition: Down Syndrome · Chromosome Disorders · Intellectual and Developmental Disabilities  ·  Sponsor: RTI International

PhaseN/A
Planned participants1400
Who can joinAll sexes, N/A to no upper limit
Healthy volunteersNo

About this study

The Collaboration for Down Syndrome Progress (CDP) is a long-term study that follows people with Down syndrome of all ages. The goal is to better understand their health, development, and everyday experiences over time. Participants and their caregivers will answer questions, share medical information, and may give samples like blood or saliva. Some participants may also take part in optional activities such as sleep studies, movement tracking, or brain imaging. By collecting the same types of information at many sites, the CDP will help researchers learn why certain health conditions are more common in people with Down syndrome and how to improve care and quality of life.

This description comes directly from the study's public registry record.

Talk to the study team

Jessica E Hunter, PhD  ·  919 541 6000  ·  jehunter@rti.org

Always discuss trial participation with your own doctor first.

Locations (16)

University of California IrvineOrange, California, United StatesNot Yet Recruiting
University of Colorado Anschutz Medical CampusAurora, Colorado, United StatesNot Yet Recruiting
University of MiamiMiami, Florida, United StatesNot Yet Recruiting
Kansas University Medical CenterKansas City, Kansas, United StatesNot Yet Recruiting
John Hopkins UniversityBaltimore, Maryland, United StatesNot Yet Recruiting
University of MinnesotaMinneapolis, Minnesota, United StatesNot Yet Recruiting
Washington University in St. LouisSt Louis, Missouri, United StatesNot Yet Recruiting
University of North Carolina at Chapel HillChapel Hill, North Carolina, United StatesNot Yet Recruiting
The Children's Hospital of PhiladelphiaPhiladelphia, Pennsylvania, United StatesNot Yet Recruiting
The Children's Hospital of PhiladelphiaPhiladelphia, Pennsylvania, United StatesNot Yet Recruiting
University of PittsburghPittsburgh, Pennsylvania, United StatesNot Yet Recruiting
St. Jude Children's Research HospitalMemphis, Tennessee, United StatesNot Yet Recruiting

+ 4 more locations — full list on the registry record.

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Source record: clinicaltrials.gov/study/NCT07625579