Condition: Hypertrophic Cardiomyopathy Without Obstruction · Sponsor: Alder Hey Children's NHS Foundation Trust
Hypertrophic Cardiomyopathy (HCM) is an inherited cardiac condition that affects the heart muscle of adults and children. Historically, doctors have been cautious about encouraging patients with HCM to exercise, as they were worried it could be unsafe due to the risk of heart problems or emergencies. But recent evidence shows that the risks of exercise for a patient with HCM are far lower than previously thought and exercise has many benefits for a child's general health and mental well-being and is an important part of their social development. One way to help children with HCM feel confident to exercise is with an individualised exercise 'prescription'. This is where a team of specialist doctors, nurses, and physiotherapists assess patients and advise them on how to exercise safely and effectively. They then provide an exercise plan or 'prescription' individualised to them. This study aims to establish whether the investigators can deliver an individualised exercise prescription (IEP) service for children with HCM who attend outpatient cardiology. A further aim is to see if children will want to take part and adhere to the IEP. In this study children aged 10 to 18 years old attending outpatient cardiology clinic at Alder Hey Children's Hospital (AHCH) under screening for HCM will be asked if they wish to take part in the study. Those who wish to take part will have extra appointments at AHCH, during which the investigators will measure their height and weight. They will …
This description comes directly from the study's public registry record.
Sophia Khan, MbChB MD(Res) · =447557356755 · sophia.khan@alderhey.nhs.uk
Lora Capobianco, PhD., CPsychol · lora.capobianco@manchester.ac.uk
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| Alder Hey Children's Hospital | Liverpool, United Kingdom | Recruiting |
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Source record: clinicaltrials.gov/study/NCT07595354