Condition: Epilepsy · Sponsor: Fondazione Policlinico Universitario Agostino Gemelli IRCCS
The transition from pediatric to adult healthcare services for individuals with epilepsy represents a major clinical and organizational challenge. This complexity arises from the heterogeneity of the underlying epileptic disorders and the frequent presence of multiple comorbidities. Furthermore, the process entails a profound shift in the patient-physician relationship, which must be re-established to allow open discussion of sensitive issues and to adapt to a different model of care. In pediatric settings, medical care is predominantly family-centered, with parents actively involved in the decision-making process. In contrast, adult care is primarily patient-centered, emphasizing individual autonomy and self-management. The \*\*transition\*\* therefore constitutes a structured process designed to prepare adolescents and young adults for adult-oriented healthcare. It aims to enhance their understanding of epilepsy, increase awareness of available treatments, and develop self-management skills that help minimize the long-term psychosocial and medical impact of the disorder. The \*\*transfer\*\*, by contrast, refers to the formal handover of medical responsibility from pediatric to adult healthcare providers. While transfer is an event, transition represents a multidimensional process that should begin well before the actual shift of care. Over the past decade, several studies have sought to address the challenges associated with this critical phase by proposing transitional…
This description comes directly from the study's public registry record.
Domenica Immacolata Battaglia · +39 06 3015 5293 · domenicaimmacolata.battaglia@policlinicogemelli.it
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| Fondazione Policlincio Universitario Agostino Gemelli | Roma, Italy | Recruiting |
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Source record: clinicaltrials.gov/study/NCT07592676