Condition: Nemaline Myopathy · Myopathies · Myopathic Conditions · Sponsor: Hospital Universitari Vall d'Hebron Research Institute
The objective of this natural history study is to comprehensively characterize the disease progression and clinical features of nemaline myopathies. The study aims to establish a well-defined cohort of patients in Spain, enabling long-term follow-up and facilitating recruitment for future clinical trials.
This description comes directly from the study's public registry record.
Laura Costa-Comellas, M.D. · +34677255332 · laura.costacomellas@vallhebron.cat
Always discuss trial participation with your own doctor first.
| University Hospital Vall d'Hebron | Barcelona, Spain | Recruiting |
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Source record: clinicaltrials.gov/study/NCT07488806