Condition: FSH · FSH Muscular Dystrophy · FSHD - Facioscapulohumeral Muscular Dystrophy · Sponsor: FSHD Society
BetterLife FSHD is a registry platform built to support people living with FSHD. It connects patients with personalized resources, tools, and research opportunities that match their health experiences and needs. At the same time, BetterLife collects secure health and experience data from patients to support research. This data is shared with researchers to help better understand FSHD and work toward improved care, treatments, and outcomes for the community. Learn more and enroll at: www.BetterLifeFSHD.org
This description comes directly from the study's public registry record.
Kayleigh Worek, MS · 781-301-6060 · betterlife@fshdsociety.org
Always discuss trial participation with your own doctor first.
| FSHD Society | Randolph, Massachusetts, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT07409142