Condition: Myotonic Dystrophy 1 · DM1 · Myotonic Dystrophy Type 1 · Sponsor: Fundació Institut Germans Trias i Pujol
Myotonic Dystrophy Type 1 (DM1) is a rare genetic neuromuscular condition that can affect multiple organs and varies widely in how it presents. DM1 is the most common form of adult-onset muscular dystrophy, with an estimated prevalence of approximately 1-5 per 10,000 people. In Spain, the condition shows notable regional differences, making it especially important to understand its characteristics within the population. The aim of this study is to support a research initiative designed to better characterise DM1. We are developing a comprehensive national registry, collecting patient-reported information, clinical data and omics data that will improve our understanding of the disease and help identify individuals who may be eligible for clinical trials.
This description comes directly from the study's public registry record.
Gisela Nogales Gadea, Ph.D. · (+34) 93 554 3050 · gnogales@igtp.cat
Alvaro S Larran Mottino, Ph.D. · alarran@igtp.cat
Always discuss trial participation with your own doctor first.
| Hospitals within the DM1 network | Multiple Locations, Andalusia, Spain | Recruiting |
| Hospitals within the DM1 network | Multiple Locations, Basque Country, Spain | Recruiting |
| Hospitals within the DM1 network | Multiple Locations, Canary Islands, Spain | Recruiting |
| Hospitals within the DM1 network | Multiple Locations, Cantabria, Spain | Recruiting |
| Hospitals within the DM1 network | Multiple Locations, Castilla-La Macha, Spain | Recruiting |
| Hospitals within the DM1 network | Multiple Locations, Catalonia, Spain | Recruiting |
| Hospitals within the DM1 network | Multiple Locations, Madrid, Spain | Recruiting |
| Hospitals within the DM1 network | Multiple Locations, Valencia, Spain | Recruiting |
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Source record: clinicaltrials.gov/study/NCT07385443