Condition: IBM · IIM · Myositis · Sponsor: Myositis International Health & Research Collaborative Alliance Foundation
Myositis diseases are each rare diseases. As in other rare diseases, people living with myositis diseases face physical and psychosocial challenges that may not be recognized in current research priorities. The PRISMS study is a global investigation that collects patient perspectives through (mostly online) methods of open-ended questions, community forums and survey to identify the most pressing research concerns as identified by patients. Findings will be analyzed to create a patient-voiced set of research priorities that can guide the direction of research and help inform funding decisions across myositis diseases. Potential participants can express interest via https://mihrafoundation.org/mihra-programs/mihra-patient-contact-registry/
This description comes directly from the study's public registry record.
Lesley Ann Saketkoo, MD/MPH · 504 822 6653 · info@MiHRAfoundation.org
Barbara Shafranski · 504 822 6653 · info@MIHRAfoundation.org
Always discuss trial participation with your own doctor first.
| MIHRA Foundation - This is a GLOBAL STUDY | New Orleans, Louisiana, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT07374107