Condition: Retinitis Pigmentosa (RP) · Sponsor: Centre Hospitalier National d'Ophtalmologie des Quinze-Vingts
This study explores whether adding early nurse-led and psychological support after the diagnosis of retinitis pigmentosa (RP) can improve patient experience and emotional well-being. RP is a rare, progressive eye disease often diagnosed after a long and difficult process, and receiving the diagnosis can be emotionally distressing. Eighty newly diagnosed adults will be randomly assigned to either usual care or an enhanced pathway that includes early follow-up with a nurse, structured emotional monitoring, and a psychologist visit at six months. The study aims to determine if this structured support improves patient satisfaction and reduces anxiety and depression compared with standard care.
This description comes directly from the study's public registry record.
Isabelle AUDO, Pr · +33 0140 02 14 30 · isabelle.audo@inserm.fr
Benoit Blanchard · +33 0140021430 · bblanchard@15-20.fr
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| Centre Hospitalier National D' Ophtalmologie Des Quinze-Vingts | Paris, Île-de-France Region, France | Recruiting |
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Source record: clinicaltrials.gov/study/NCT07292987