Condition: Spinal Muscular Atrophy · Sponsor: Fundació Sant Joan de Déu
The goal of this observational study is to set up a longitudinal data collection study to perform a long-term follow-up of SMA patients in a real-world setting, and to standardise and homogenize the data collection process for SMA patient's data. Treated and untreated patients will be followed based on the routine clinical practice schedule.
This description comes directly from the study's public registry record.
CUIDAME Project Manager · 0034 936 009 751 · info@registro-cuidame.org
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| Hospital Sant Joan de Déu | Esplugues de Llobregat, Spain | Recruiting |
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Source record: clinicaltrials.gov/study/NCT07231549