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Study identifier: NCT07185919 Synced from ClinicalTrials.gov · July 29, 2026
● Recruiting

A Study of the Effectiveness, Safety and the Long-term Outcomes of Participants With Progressive Familial Intrahepatic Cholestasis (PFIC) Who Take Odevixibat (Bylvay) in South Korea

Condition: Progressive Familial Intrahepatic Cholestasis  ·  Sponsor: Ipsen

PhaseN/A
Planned participants10
Who can joinAll sexes, N/A to no upper limit
Healthy volunteersNo

About this study

This study will collect information from people with Progressive Familial Intrahepatic Cholestasis (PFIC) as they use odevixibat in their daily lives. Odevixibat is a medicine that helps people with PFIC, a type of rare disease that makes their liver not work well and causes itching and yellow skin. Odevixibat was first allowed to be used for PFIC in babies older than 6 months by the European Medicines Agency (EMA) on 16 July 2021 and by the United States Food and Drug Administration (FDA) on 20 July 2021 for itching in babies older than 3 months. Obevixibat was approved by the Ministry of Food and Drug Safety (MFDS) in South Korea on 23 August 2024. This study will collect information to see how well and how safe odevixibat is in the long run for participants in South Korea.

This description comes directly from the study's public registry record.

Talk to the study team

Ipsen Clinical Study Enquiries  ·  See e mail  ·  clinical.trials@ipsen.com

Always discuss trial participation with your own doctor first.

Locations (3)

Pusan National University Yangsan HospitalGyeongsang, South KoreaRecruiting
Seoul National University HospitalSeoul, South KoreaActive Not Recruiting
Severance Hospital, Yonsei University Health SystemSeoul, South KoreaRecruiting

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Source record: clinicaltrials.gov/study/NCT07185919