Condition: Bronchopulmonary Dysplasia (BPD) · Chronic Lung Disease of Newborn · HRQOL (Health Related Quality Of Life) · Sponsor: Global Foundation for the Care of Newborn Infants
The objective of this study is to examine the long-term impact of having a child with Bronchopulmonary Dysplasia (BPD) on the parents and caregivers from the time of diagnosis through adulthood. The primary focus will be on parents and caregivers of children until the age of 18 (\< 18) years who were diagnosed with BPD as newborns. Data will be collected through an online questionnaire in France, Germany, Italy, the Netherlands, Spain, the United Kingdom (including Northern Ireland), and the United States. It will ask about inclusion and exclusion criteria, background information (caregiver, child, and family situation), the child's medical situation, parental health-related quality of life (HRQoL), health literacy, feelings, support structures, and economic burden of the family.
This description comes directly from the study's public registry record.
Christina Tischer, Dr · +49 (0)89 / 89083260 · research@efcni.org
Julia Feiler, Dr · Julia.feiler@gfcni.org
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| Global Foundation for the Care of Newborn Infants (GFCNI) | München, Bavaria, Germany | Recruiting |
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Source record: clinicaltrials.gov/study/NCT07134387