Condition: Huntington Disease · Healthy · Sponsor: University of Rochester
MEND-HD is a longitudinal study evaluating the feasibility of passive monitoring of gait and chorea in patients with HD and the meaningfulness of these outcomes for patients with HD and their care partners/support persons. Participants will take part in four virtual visits with study investigators to answer survey questions on movement and cognition, perform in-home movement assessments, and take part in an interview regarding the meaningfulness of gait and chorea in their daily lives. Participant and care partner interviews will be used for symptom mapping and qualitative data analysis to assess the relevance and impact of the targeted symptoms on the participant's daily life. The study may be extended to 3 years to include yearly visits.
This description comes directly from the study's public registry record.
Sugitha Maheswaran, BS · 5857040344 · Sugi_maheswaran@urmc.rochester.edu
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| University of Rochester Medical Center | Rochester, New York, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT07010705