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Study identifier: NCT06989593 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

Breaking Silence Through Story: A Narrative Medicine Intervention for Parents of Children With Urogenital Conditions

Condition: DSD · Hypospadias  ·  Sponsor: Sarah Schlegel

PhaseNA
Planned participants20
Who can joinAll sexes, 18 Years to no upper limit
Healthy volunteersYes

About this study

The goal of this clinical trial is to learn whether a journaling intervention can reduce stress and anxiety in parents of children with urogenital conditions (such as differences of sex development and hypospadias). The main questions it aims to answer are: * Does guided journaling help to reduce anxiety levels in parents of children with urogenital conditions? * What are parents' perspectives on group-based writing interventions for future support programs? Participants will: * Complete a short anxiety questionnaire (the General Anxiety Disorder-7 scale) at the beginning of the study * Receive a physical journal with 5 writing prompts designed to help process emotions related to their child's condition * Complete 5 journal entries over several weeks, writing about their experiences and feelings * Complete the same anxiety questionnaire again after finishing the journal entries * Participate in a 45-minute interview to discuss how the journaling affected their stress levels and gather feedback on potential group-based writing programs

This description comes directly from the study's public registry record.

Talk to the study team

Alex Wheelock  ·  617-919-7031  ·  Journaling@childrens.harvard.edu

Sarah Schlegel, MD, MS  ·  617-355-3523

Always discuss trial participation with your own doctor first.

Locations (1)

Boston Children's HospitalBoston, Massachusetts, United StatesRecruiting

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Source record: clinicaltrials.gov/study/NCT06989593