Condition: Spinal Muscular Atrophy · Sponsor: Columbia University
The purpose of this project is to investigate the utility of the SMA EFFORT, an SMA-specific patient-reported outcome measure, to assess perceived physical fatigability that is anchored to intensity and duration of activities. We aim to characterize perceived physical fatigability (PPF) in a diverse cohort of people with SMA (pwSMA) and evaluate the change of PPF before and after nusinersen dosing.
This description comes directly from the study's public registry record.
Rafael Rodriguez-Torres, DPT · 3472877093 · rsr2157@cumc.columbia.edu
Cara Kanner, DPT · 516-581-8150 · chy2112@cumc.columbia.edu
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| Columbia University Irving Medical Center | New York, New York, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT06955897