Condition: Duchenne Muscular Dystrophy (DMD) · Sponsor: Red Nucleus Enterprise Solutions, LLC
The purpose of this study is to understand DMD functional losses or abilities and their association with independence and quality of life from the perspective of individuals with DMD and/or and their caregivers. This is a qualitative interview study in which individuals with DMD and/or their caregivers will be asked to participate in a semi-structured, approximately 60- minute interview. Interviews will focus on functional abilities and independence. Caregivers and boys with DMD will be interviewed. This study includes no treatment nor intervention; however, some participants are being treated by a drug that is approved in the U.S. and the U.K. and under investigation in other geographies.
This description comes directly from the study's public registry record.
Mary Hubbard · 904-541-9326 · mhubbard@rednucleus.com
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| Red Nucleus | Yardley, Pennsylvania, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT06925269