Condition: Financial Hardship · Alzheimer's Disease (AD) · Alzheimer's Disease and Related Dementia (ADRD) · Sponsor: Fred Hutchinson Cancer Center
Alzheimer's Disease and related dementias (AD/ADRD) are common and debilitating conditions. Financial hardship, a multidimensional construct of financial strain, financial stress and asset depletion, is common in AD/ADRD due to exorbitant out-of-pocket spending such as for long-term care, lower work productivity and income for their caregivers that can last for decades after disease onset, and difficulty deciding between nursing home care or home-based care while negotiating insurance coverage. People from historically marginalized groups can experience a double disparity with fewer financial resources to manage AD/ADRD and a greater risk of AD/ADRD. Screening for financial hardship in AD/ADRD is key for addressing the needs of patients and caregivers but critical barriers include a lack of suitable screening measures. Current measures are very general and meant for people without chronic medical conditions or are specific to other diseases. To fill this gap, this study will create a suite of measures that can screen for financial hardship in people with AD/ADRD and their families and caregivers. The measures will include a set to assess caregiver burden; a set to assess patient hardship as reported by the caregiver for patients who cannot report for themselves; and a set of patient-reported measures for patients that are able to report for themselves. To create these financial hardship screening measures, the project will conduct the following aims. Aim 1- Develop financial …
This description comes directly from the study's public registry record.
Diana K Lowry, MPH · 206-667-7372 · dlowry@fredhutch.org
Salene Jones, PhD, MA · 206-667-6976 · smjones3@fredhutch.org
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| Fred Hutchinson Cancer Center | Seattle, Washington, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT06922188