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Study identifier: NCT06910813 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

DFT383 in Pediatric Participants With Nephropathic Cystinosis

Condition: Nephropathic Cystinosis  ·  Sponsor: Novartis Pharmaceuticals

PhasePhase 1/Phase 2
Planned participants30
Who can joinAll sexes, 2 Years to 5 Years
Healthy volunteersNo

About this study

An open-label, multi-center, phase I/II study to assess the safety, tolerability and efficacy of DFT383 in pediatric participants with nephropathic cystinosis, followed by a long-term extension phase. The purpose of this clinical study is to assess safety, tolerability, and efficacy of DFT383 in participants aged 2 to 5 years with nephropathic cystinosis. The study consists of a Core Phase and a long-term Extension Phase. DFT383 is a cellular gene therapy. This study includes an active arm (Cohort 1) of participants treated with study treatment DFT383 and a concurrent reference arm (Cohort 0). Participants in Cohort 0 will not receive study treatment and will only participate in the Core Phase of the study. The study is not randomized and Cohort 0 aims to collect prospective and concurrent data in this rare disease.

This description comes directly from the study's public registry record.

Talk to the study team

Novartis Pharmaceuticals  ·  1-888-669-6682  ·  novartis.email@novartis.com

Novartis Pharmaceuticals

Always discuss trial participation with your own doctor first.

Locations (4)

University of California at San Diego - Rady Children's HospitalSan Diego, California, United StatesRecruiting
Stanford University - Stanford Children's HealthStanford, California, United StatesRecruiting
Emory University School of Medicine - Children's Healthcare of Atlanta (recuiting Cohort 0)Atlanta, Georgia, United StatesRecruiting
Baylor College of Medicine - Texas Children's Hospital (recuiting Cohort 0)Houston, Texas, United StatesRecruiting

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Source record: clinicaltrials.gov/study/NCT06910813