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Study identifier: NCT06888388 Synced from ClinicalTrials.gov · July 29, 2026
● Recruiting

Long-term Safety of Nipple Sparing Mastectomy in Women With High Penetrance Breast Cancer Susceptibility Genes in Breast Cancer

Condition: Breast Cancer Surgery  ·  Sponsor: Sir Mortimer B. Davis - Jewish General Hospital

PhaseN/A
Planned participants4700
Who can joinFemale, 18 Years to 90 Years
Healthy volunteersNo

About this study

Patients with a germline pathogenic variant (GPV) in high-penetrance breast cancer susceptibility genes who are considering risk reducing mastectomy (RRM) often strongly desire to keep their nipple areola complex but inquire as to whether it is safe to do so. Relative to traditional or skin sparing mastectomy (SSM) techniques, nipple sparing mastectomy (NSM) is associated with improved psychosocial and sexual well-being and is significantly better for body image and reducing feelings of disfigurement. Despite this, guidelines have yet to endorse the use of NSM over other RRM techniques, stating that more data and longer follow-up are needed to confirm it as a safe and effective strategy in GPV carriers. As NSM was not routinely adopted in high-risk patient populations undergoing RRM before 2010, there has been little data to inform the long-term oncologic safety of NSM. Well-designed studies have reported low to negligible rates of subsequent breast cancer in BRCA1/2 carriers following NSM, but have been limited by short median follow-up of less than 3 years. The current study is designed to confirm, with longer follow-up, prior findings on the oncologic safety of NSM in unaffected BRCA1/2 carriers. The investigators will also expand data to other high-penetrance GPV carriers, including PALB2, CDH1, PTEN, and TP53, for whom there is little-to-no data on outcomes following RRM.

This description comes directly from the study's public registry record.

Talk to the study team

Stephanie Wong, MD  ·  5143408222  ·  sm.wong@mcgill.ca

Sarah Sabboobeh, MSc  ·  5143408222  ·  sarah.sabboobe@ladydavis.ca

Always discuss trial participation with your own doctor first.

Locations (12)

Yale UniversityNew Haven, Connecticut, United StatesRecruiting
Brigham and Women's Hospital - Dana-Farber Brigham Cancer CenterBoston, Massachusetts, United StatesNot Yet Recruiting
Memorial Sloan Kettering Cancer Center (MSKCC)New York, New York, United StatesNot Yet Recruiting
University of PennsylvaniaPhiladelphia, Pennsylvania, United StatesRecruiting
University of Melbourne, Peter MacCallum Cancer CenterMelbourne, AustraliaNot Yet Recruiting
Ziekenhuis Aan de StroomAntwerp, BelgiumActive Not Recruiting
University of CalgaryCalgary, Alberta, CanadaRecruiting
Hamilton Health SciencesHamilton, Ontario, CanadaRecruiting
Women's College Hospital, University of TorontoToronto, Ontario, CanadaNot Yet Recruiting
Jewish General HospitalMontreal, Quebec, CanadaRecruiting
CHU de Quebec Université lavalQuébec, Quebec, CanadaRecruiting
Champalimaud Foundation, University of LisbonLisbon, PortugalNot Yet Recruiting

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Source record: clinicaltrials.gov/study/NCT06888388