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Study identifier: NCT06881368 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

Phenotypic and Etiological Characterization of Susac Syndrome

Condition: Susac Syndrome  ·  Sponsor: Assistance Publique - Hôpitaux de Paris

PhaseN/A
Planned participants180
Who can joinAll sexes, 18 Years to no upper limit
Healthy volunteersNo

About this study

SUSAC's Syndrome (SS) is characterized by the clinical triad of encephalopathy, hearing loss, and retinal artery branch occlusions. Since the first description of SS in 1979, hundreds of patients with SS, mostly young women, have been reported. However, comprehensive epidemiological, clinical and etiological features of SS have never been specifically addressed so far.

This description comes directly from the study's public registry record.

Talk to the study team

Karim Sacre, MD, PHD  ·  +33140258705  ·  karim.sacre@aphp.fr

Thomas Papo, MD, PHD  ·  thomas.papo@aphp.fr

Always discuss trial participation with your own doctor first.

Locations (1)

Hôpital BichatParis, FranceRecruiting

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Source record: clinicaltrials.gov/study/NCT06881368