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Study identifier: NCT06796972 Synced from ClinicalTrials.gov · July 29, 2026
● Recruiting

In Utero Surgery for Fetal Myelomeningocele: Decision-making Mechanisms and Psychological Impact of Prenatal Therapy

Condition: Myelomeningocele  ·  Sponsor: Assistance Publique - Hôpitaux de Paris

PhaseNA
Planned participants44
Who can joinAll sexes, 18 Years to no upper limit
Healthy volunteersYes

About this study

Myelomeningocele is a malformation of the spine and spinal cord, generally diagnosed prenatally, and responsible for a complex disability for the unborn child. In the event of continued pregnancy, in utero surgery can be performed to improve the prognosis of the children. This fetal therapy does not allow a cure and induces risks for the fetus, and for the mother, both during surgery and for her obstetric future. Currently, few studies have focused on the factors influencing the choice to resort to in utero surgery and the experience of patients and co-parents before and after this intervention. No qualitative study on the subject has been published to date.

This description comes directly from the study's public registry record.

Talk to the study team

Lucie GILBAUD, MD  ·  00 33 6 31 82 32 71  ·  lucie.guilbaud@aphp.fr

Always discuss trial participation with your own doctor first.

Locations (1)

Service de Médecine Foetale Hôpital Armand TrousseauParis, Paris, FranceRecruiting

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Source record: clinicaltrials.gov/study/NCT06796972