Condition: Glycogen Storage Disease · GSD Type 0A · GSD Type 0B · Sponsor: Duke University
The purpose of this study is to collect and study key medical data about several ultra-rare GSDs (Glycogen Storage Diseases) including, but not limited to, GSD types 0a, 0b, VII, X, XII, XIII, XV, PRKAG2 syndrome and Danon disease.
This description comes directly from the study's public registry record.
Rebecca Koch, PhD, RDN · 919-681-8823 · rebecca.koch@duke.edu
Nisha Dalal, MS, CCC-SLP · 919-668-3107 · nisha.dalal@duke.edu
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| Duke University | Durham, North Carolina, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT06795152