Condition: Congenital Central Hypoventilation Syndrome · Sponsor: Ann & Robert H Lurie Children's Hospital of Chicago
The purpose of this study is to capture longitudinal natural history data in Congenital Central Hypoventilation Syndrome (CCHS). This will include capturing standardized clinical data from standard of care assessments at several CCHS referral centers. Funding source-FDA OOPD
This description comes directly from the study's public registry record.
Casey Rand, MSDS · 312-227-3300 · Crand@luriechildrens.org
Erin Lonergan, MS · 312-227-3300 · ersmith@luriechildrens.org
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| Ann & Robert H Lurie Children's Hospital of Chicago | Chicago, Illinois, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT06554275