Condition: Paroxysmal Nocturnal Hemoglobinuria · Sponsor: International PNH Interest Group
The aim of this International PNH Interest Group (IPIG) registry is to develop an international database to prospectively collect data on patients with PNH covering clinical outcomes, patient reported outcomes (PROs), and health-resource utilization (HRU) on all enrolled patients, as well as long term safety data.
This description comes directly from the study's public registry record.
IPIG Registry Coordinator · Please email · registry@pnhinterestgroup.org
Always discuss trial participation with your own doctor first.
| International PNH Interest Group | Altamonte Springs, Florida, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT06524726