Condition: LAMA2-MD \(Merosin Deficient Congenital Muscular Dystrophy, MDC1A\) · Sponsor: Nationwide Children's Hospital
The goal of this observational study is to understand how young children with LAMA2-related dystrophy move and change over time. We will also learn about how this condition impacts other body systems. Participants will undergo: * Neuromuscular assessments * Blood collections * Swallowing and breathing assessments * Questionnaires
This description comes directly from the study's public registry record.
Kevin Warf · (614) 355-2765 · ReadyCMDLAMA2@nationwidechildrens.org
Always discuss trial participation with your own doctor first.
| University of California, Los Angeles | Los Angeles, California, United States | Recruiting |
| Stanford University | Stanford, California, United States | Recruiting |
| Ann & Robert H. Lurie Children's Hospital of Chicago | Chicago, Illinois, United States | Recruiting |
| University of Iowa Stead Family Children's Hospital | Iowa City, Iowa, United States | Recruiting |
| National Institute of Neurological Disorders and Stroke, NIH | Bethesda, Maryland, United States | Recruiting |
| Boston Children's Hospital | Boston, Massachusetts, United States | Recruiting |
| University of Minnesota | Saint Paul, Minnesota, United States | Recruiting |
| Washington University in St. Louis | St Louis, Missouri, United States | Recruiting |
| University of Rochester | Rochester, New York, United States | Recruiting |
| Cincinnati Children's Hospital Medical Center | Cincinnati, Ohio, United States | Recruiting |
| Nationwide Children's Hospital | Columbus, Ohio, United States | Recruiting |
| Children's Hospital of Pittsburgh | Pittsburgh, Pennsylvania, United States | Recruiting |
+ 2 more locations — full list on the registry record.
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Source record: clinicaltrials.gov/study/NCT06503367