Condition: Paroxysmal Nocturnal Hemoglobinuria · Sponsor: Novartis Pharmaceuticals
The study aims to longitudinally capture the full spectrum of symptoms, treatment utilization, and overall Health-Related Quality of Life (HRQoL) experienced by PNH patients. By primarily utilizing home reported outcomes (HRO) data on symptom burden and treatment usage, supplemented with patient-reported outcome (PRO) measures, the study seeks to establish a new real-world data (RWD) source to understand symptom variability and HRQoL among PNH patients, including those receiving orally administered iptacopan.
This description comes directly from the study's public registry record.
Novartis Pharmaceuticals · +41613241111 · novartis.email@novartis.com
Novartis Pharmaceuticals
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| Novartis Investigative Site | East Hanover, New Jersey, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT06411626