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Study identifier: NCT06399952 Synced from ClinicalTrials.gov · July 29, 2026
● Recruiting

Baker Gordon Syndrome Natural History Study

Condition: Rare Diseases · Autism or Autistic Traits · Development Delay  ·  Sponsor: University of Missouri-Columbia

PhaseN/A
Planned participants50
Who can joinAll sexes, 0 Years to 99 Years
Healthy volunteersNo

About this study

The goal of this study is to conduct a prospective, longitudinal assessment of the natural clinical progression of children and adults with Synaptotagmin1-Associated Neurodevelopmental Disorder also known as Baker Gordon Syndrome (BAGOS). This will be performed by acquiring baseline measurements and developing effective outcome measures and diagnostic tools for the disorder, to prepare the healthcare system for future clinical trials.

This description comes directly from the study's public registry record.

Talk to the study team

W. David R Arnold, MD  ·  573-884-2924  ·  wdavidarnold@health.missouri.edu

Always discuss trial participation with your own doctor first.

Locations (1)

University of Missouri ColumbiaColumbia, Missouri, United StatesRecruiting

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Source record: clinicaltrials.gov/study/NCT06399952