Condition: Sickle Cell Disease · Sponsor: RTI International
The goal of this observational study is to help us understand more about the best ways to help individuals living with Sickle Cell Disease (SCD) get the best care. The main question it aims to answer is: How to find individuals unaffiliated from SCD specialist care use three distinct pathways? Once unaffiliated individuals are found using the pathways, Investigators will employ linkage coordinators (trained staff) to engage these patients in care. Participants will be asked to fill out an assessment survey which will cover areas such as previous and current treatment, clinic and hospital experience, pain, and quality of life. Participants will also be given the option of participation in a 1-hour long interview how they feel about treatment for sickle cell disease including clinic experience, pain, and quality of life?
This description comes directly from the study's public registry record.
Lisa A Cox, MS · 770-407-4908 · lacox@rti.org
Sara Jacobs, PhD · 770-407-4951 · sjacobs@rti.org
Always discuss trial participation with your own doctor first.
| University of Alabama, Birmingham (UAB) | Birmingham, Alabama, United States | Recruiting |
| Phoenix Children's Hospital | Phoenix, Arizona, United States | Recruiting |
| University of California, San Francisco (UCSF) | Oakland, California, United States | Recruiting |
| Augusta University | Augusta, Georgia, United States | Recruiting |
| University of Illinois | Chicago, Illinois, United States | Recruiting |
| Cleveland Clinic | Cleveland, Ohio, United States | Recruiting |
| University of Pennsylvania | Philadelphia, Pennsylvania, United States | Recruiting |
| University of Tennessee at Memphis | Memphis, Tennessee, United States | Recruiting |
| University of Texas at Houston | Houston, Texas, United States | Recruiting |
Get one email when the public record changes — results posted, or the study's status changes. Nothing else, ever.
We email about this public record only. Unsubscribe anytime with one click. Never medical advice.
This page is independently generated by Eichor from the public ClinicalTrials.gov record and re-synced daily. It is not the sponsor's official website unless claimed. Nothing here is medical advice; eligibility is always determined by the study team — talk to your own doctor first.
Source record: clinicaltrials.gov/study/NCT06385886