Condition: TNNT1-associated Myopathy · Infantile-onset Nemaline Rod Myopathy · Myopathies, Nemaline · Sponsor: Clinic for Special Children
WiTNNess is designed to accurately document the natural course and variation of muscle disease caused by pathogenic changes of the TNNT1 gene. The primary aim of the study is to specify meaningful outcome measures for future clinical trials. WiTNNess is open to children and adults worldwide. Participants can choose to include their information once (cross-sectional cohort) or every few months (prospective cohort).
This description comes directly from the study's public registry record.
Justin Hersh · 7176879407 · jhersh@clinicforspecialchildren.org
Joelle Williamson, MPH · 7176879407 · jwilliamson@clinicforspecialchildren.org
Always discuss trial participation with your own doctor first.
| Clinic for Special Children | Gordonville, Pennsylvania, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT06374719