Condition: Epilepsy · Seizure Disorder · Neurologic Disorder · Sponsor: Epilepsy Foundation of America
The Epilepsy Learning Health System (ELHS) is a quality improvement and research network to improve outcomes for people with epilepsy. The ELHS is designed as a model of value-based chronic care for epilepsy as envisioned by the National Academies of Medicine Committee in their landmark reports "The Learning Health System" and "Epilepsy Across the Spectrum: Promoting Health and Understanding". The ELHS network is a collaboration among clinicians, patients and researchers that promotes the use of data for multiple purposes including one-on-one clinical care, population management, quality improvement and research. The ELHS Registry includes data on children and adults with epilepsy collected during the process of standard epilepsy care. These data are used to create population health reports and to track changes in outcomes over time. ELHS teams use quality improvement methods, such as Plan-Do-Study-Act (PDSA) cycles, to continuously learn how to improve care.
This description comes directly from the study's public registry record.
Brandy E Fureman, PhD · 2404767127 · bfureman@efa.org
Kathleen Farrell, MB BCH BAO · 732-832-5983 · kfarrell@efa.org
Always discuss trial participation with your own doctor first.
| Barrow Neurological Institute Comprehensive Epilepsy Center | Phoenix, Arizona, United States | Recruiting |
| Children's Hospital Los Angeles | Los Angeles, California, United States | Not Yet Recruiting |
| University of Southern California | Los Angeles, California, United States | Recruiting |
| UC Health University of Colorado Anshutz | Aurora, Colorado, United States | Recruiting |
| Epilepsy Foundation | Bowie, Maryland, United States | Recruiting |
| Partners - Massachusetts General Hospital Epilepsy Service (MGH)/ Partners - Brigham and Women's (BWH) | Boston, Massachusetts, United States | Recruiting |
| Brigham & Women's Hospital | Boston, Massachusetts, United States | Recruiting |
| Akron Children's Hospital | Akron, Ohio, United States | Not Yet Recruiting |
| Cincinnati Children's Hospital Comprehensive Epilepsy Center (CCHMC) | Cincinnati, Ohio, United States | Not Yet Recruiting |
| University of Cincinnati Gardner Neuroscience Institute Epilepsy Center | Cincinnati, Ohio, United States | Recruiting |
| Penn State Hershey | Hershey, Pennsylvania, United States | Recruiting |
| Children's Hospital of Philadelphia (CHOP) | Philadelphia, Pennsylvania, United States | Recruiting |
+ 1 more locations — full list on the registry record.
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Source record: clinicaltrials.gov/study/NCT06265103