Condition: Angelman Syndrome · Sponsor: Centre Hospitalier Universitaire de Liege
This study is a 9-year natural history study for patients with Angelman syndrome in Belgium (a genetic neurodevelopmental disorder, affecting 500,000 individuals in the world). It includes a 3-year recruitment phase, a 5 year follow-up and a year to analyze the collected data. The investigators plan to include 30 patients with a semi-annual follow-up for 4 years. The investigators will collect relevant retrospective and prospective data using age-standardized scales and questionnaires for functional motor assessments and global developmental assessment.
This description comes directly from the study's public registry record.
Noor Benmhammed · 43217726 · Noor.Benmhammed@citadelle.be
Tamara Dangouloff, PhD · tamara.dangouloff@uliege.be
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| CHR Citadelle Liège | Liège, Liège, Belgium | Recruiting |
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Source record: clinicaltrials.gov/study/NCT06229769