Condition: Focal Segmental Glomerulosclerosis · Proteinuria · Nephrotic Syndrome · Sponsor: Christoph Aufricht
Nephrotic syndrome is the clinical phenotype of a heterogeneous group of glomerular diseases that may present with varying degrees of urinary protein loss (proteinuria), dysproteinemia in the blood, fluid retention and impaired renal function. The AustRian RESistanT NEPHROtic Syndrome Treatment Response RegIStry and Biobank (ARREST-NEPHROSIS) sets out to achieve the following goals, as typical categories of rare disease registries 1. Obtaining real world data on practice patterns and outcomes 2. Networking between affected patients, families, and clinicians. 3. Establish a patient base for facilitated recruitment in studies of drugs, medical devices, and products 4. Development of a Biobank to enable research of potential biomarkers and therapy or disease courses
This description comes directly from the study's public registry record.
Christoph Aufricht, Prof. MD · +4314040021115 · christoph.aufricht@meduniwien.ac.at
Lisa Daniel-Fischer, MD · +4314040021115 · lisa.daniel-fischer@meduniwien.ac.at
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| Division of Pediatric Nephrology and Gastroenterology, Department of Pediatrics and Adolescent Medicine, Comprehensive Center for Pediatrics, Medical University of Vienna, 1090 Vienna, Austria. | Vienna, Austria | Recruiting |
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Source record: clinicaltrials.gov/study/NCT06162546