Condition: Pediatric ALL · Respiratory Insufficiency · Communication · Sponsor: Johns Hopkins University
This is a multicenter study to test a decision-making support process for families and clinicians facing decisions about chronic home ventilation for a child. The investigators hypothesize that the intervention will increase family preparedness for decision-making and will improve clinician-family shared-decision making. Half of families will be assigned to "usual care" arm and half to the "intervention" arm. Intervention families will view the study website with study staff and will answer questions related to website content. All families will be interviewed and surveyed at 1, 6 and 12 months after enrollment. Each family will designate 1-2 physician involved in the decision about home ventilation; each physician will be interviewed and surveyed at 1 month.
This description comes directly from the study's public registry record.
Renee D Boss, MD · 4106146444 · rboss1@jhu.edu
Fiona Jardine, RN · 410-955-5232 · fjardin1@jhu.edu
Always discuss trial participation with your own doctor first.
| Johns Hopkins All Childrens Hospital | Tampa, Florida, United States | Recruiting |
| Children's Hospital New Orleans | New Orleans, Louisiana, United States | Recruiting |
| Johns Hopkins University School of Medicine | Baltimore, Maryland, United States | Recruiting |
| Seattle Childrens Hospital | Seattle, Washington, United States | Recruiting |
Get one email when the public record changes — results posted, or the study's status changes. Nothing else, ever.
We email about this public record only. Unsubscribe anytime with one click. Never medical advice.
This page is independently generated by Eichor from the public ClinicalTrials.gov record and re-synced daily. It is not the sponsor's official website unless claimed. Nothing here is medical advice; eligibility is always determined by the study team — talk to your own doctor first.
Source record: clinicaltrials.gov/study/NCT06102330