Condition: Nodular Lymphocyte-Predominant Hodgkin Lymphoma · Sponsor: St. Jude Children's Research Hospital
There is a pressing need to measure patient-reported symptoms in patients of all ages diagnosed with nodular lymphocyte-predominant Hodgkin lymphoma (NLPHL). This study aims to measure longitudinal symptom burden and treatment tolerability utilizing validated patient-reported outcomes (PROs) instruments. Primary Objective: * To develop the data collection infrastructure required to prospectively collect longitudinal electronic patient-reported outcomes (PROs) survey instruments in adult and pediatric patients diagnosed with NLPHL. Secondary Objective: * To examine differences in baseline and longitudinal changes in PROs based on disease characteristics, disease status, and treatment strategies among adult and pediatric patients diagnosed with NLPHL.
This description comes directly from the study's public registry record.
Valerie Crabtree, PhD · 888-226-4343 · referralinfo@stjude.org
Jessi Rogers Blake, BSN,RN,CCRP · 901-595-4108 · jessi.rogers-blake@stjude.org
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| Memorial Sloan Kettering Cancer Center | New York, New York, United States | Recruiting |
| University of Rochester Medical Center | Rochester, New York, United States | Recruiting |
| St. Jude Children's Research Hospital | Memphis, Tennessee, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT06098430