Condition: ALS · PLS · MND (Motor Neurone DIsease) · Sponsor: Massachusetts General Hospital
This is a data repository for multi-site multi-protocol clinic-based Natural History Study of ALS and Other Motor Neuron Disorders (MND). All people living with ALS or other MNDs who attend clinics at the Study hospitals (sites) are offered to participate in the Study. The Sites collect so-called Baseline information including demographics, disease history and diagnosis, family history, etc. At each visit, the Sites also collect multiple disease-specific outcome measures and events. The information is captured in NeuroBANK, a patient-centric clinical research platform. The Sites have an option to choose to collect data into 20+ additional forms capturing biomarkers and outcome measures. Captured data after its curation are anonymized (all personal identifiers and dates are being removed), and the anonymized dataset is shared with medical researchers via a non-exclusive revocable license. Funding Source - Biogen, Inc.; Mitsubishi Tanabe Pharma America; FDA OOPD.
This description comes directly from the study's public registry record.
Natalia Tarasenko · 1617240346 · ntarasenko@mgh.harvard.edu
Always discuss trial participation with your own doctor first.
| Loma Linda University Health | Loma Linda, California, United States | Recruiting |
| Kaiser Permanente | Los Angeles, California, United States | Recruiting |
| University of Florida | Gainesville, Florida, United States | Recruiting |
| Northwestern University | Chicago, Illinois, United States | Recruiting |
| Lahey Clinic | Burlington, Massachusetts, United States | Recruiting |
| Henry Ford Health System | Detroit, Michigan, United States | Recruiting |
| Trinity Health Michigan | Grand Rapids, Michigan, United States | Recruiting |
| University of Minnesota | Minneapolis, Minnesota, United States | Recruiting |
| Saint Louis University | St Louis, Missouri, United States | Recruiting |
| Providence ALS Clinic | Portland, Oregon, United States | Recruiting |
| Thomas Jefferson University | Philadelphia, Pennsylvania, United States | Recruiting |
| Temple University Lewis Katz School of Medicine | Philadelphia, Pennsylvania, United States | Recruiting |
+ 6 more locations — full list on the registry record.
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This page is independently generated by Eichor from the public ClinicalTrials.gov record and re-synced daily. It is not the sponsor's official website unless claimed. Nothing here is medical advice; eligibility is always determined by the study team — talk to your own doctor first.
Source record: clinicaltrials.gov/study/NCT05966038