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Study identifier: NCT05954403 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

National Cohort on Congenital Defects of the Eye

Condition: Anophthalmia · Microphthalmia · Aniridia  ·  Sponsor: Institut National de la Santé Et de la Recherche Médicale, France

PhaseN/A
Planned participants800
Who can joinAll sexes, N/A to no upper limit
Healthy volunteersNo

About this study

Congenital malformations of the eye comprise various developmental defects including microphthalmia, anophthalmia, aniridia, and anterior segment anomalies (such as Peters and Axenfeld-Rieger anomalies). These malformations are frequently associated with extra-ocular features and intellectual disability. However, little is known about visual outcome, frequency and consequences of extra-ocular features in patients. The originality of the project will be to include a spectrum of malformation thought to be a phenotypic continuum (anophthalmia, microphthalmia, aniridia, anterior segment dysgnesis). In addition, we aim to conduct a 10 year follow-up of these children, thus allowing determining ocular and neurological outcomes as any other medical event. We should also be able to determine phenotypic factors that would be associated with good or poor visual and neurologic outcomes

This description comes directly from the study's public registry record.

Talk to the study team

Nicolas NC CHASSAING, Dr  ·  0033 5 61 77 90 55  ·  chassaing.n@chu-toulouse.fr

Patrick CALVAS, Pr  ·  0033 5 61 77 90 79  ·  calvas.p@chu-toulouse.fr

Always discuss trial participation with your own doctor first.

Locations (1)

RaDiCo-ACOEILParis, Île-de-France Region, FranceRecruiting

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Source record: clinicaltrials.gov/study/NCT05954403