Condition: Friedreich Ataxia · Sponsor: German Center for Neurodegenerative Diseases (DZNE)
The PROFA study is an international, multi-centric observational and validation study to assess the patient-reported, psychosocial and economic outcomes of patients with Friedreich Ataxia (FA). Eligible patients will be recruited from six study centers in Germany, Austria and France. Patients will complete a baseline assessment via face-to-face interviews at the study centers and multiple momentary follow-up assessments via a mobile-health app at home daily to monthly for six months. Study results will gain essential and in-depth insights into the daily life of patients with FA.
This description comes directly from the study's public registry record.
Bernhard Michalowsky, PD Dr. · +49 3834 868530 · bernhard.michalowsky@dzne.de
Maresa Buchholz, Dr. · +49 3834 868534 · maresa.buchholz@dzne.de
Always discuss trial participation with your own doctor first.
| Klinik für Neurologie, Medizinische Universität Innsbruck | Innsbruck, Austria | Recruiting |
| Paris Brain Institute | Paris, France | Recruiting |
| Department of Neurology, RWTH Aachen University | Aachen, Germany | Recruiting |
| German Center for Neuro-degenerative Diseases (DZNE) | Bonn, Germany | Recruiting |
| Friedrich-Baur-Institut an der Neurologischen Klinik und Poliklinik | Münich, Germany | Recruiting |
| Neurologische Klinik und Hertie-Institut für Klinische Hirnforschung, Universitätsklinik Tübingen | Tübingen, Germany | Not Yet Recruiting |
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Source record: clinicaltrials.gov/study/NCT05943002