Condition: Charcot-Marie-Tooth Disease · Charcot-Marie-Tooth · Charcot-Marie-Tooth Disease, Type IA · Sponsor: Hereditary Neuropathy Foundation
The goal of this Natural History Study for Charcot-Marie-Tooth is to acquire, record, and analyze patient-reported data and associated genetic reports, Electronic Health Records (EHRs) and clinical notes to identify the burden, diagnostic journey, and prevalence of disease that will aid scientists in their work toward finding a cure. Participants will be asked to complete a Natural History Survey.
This description comes directly from the study's public registry record.
Allison Moore · 212-722-8396 · allison@hnf-cure.org
Joy Aldrich · 212-722-8396 · JoyAldrich@hnf-cure.org
Always discuss trial participation with your own doctor first.
| Hereditary Neuropathy Foundation | New York, New York, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT05902351