Condition: Sanfilippo Syndrome Type C · Sponsor: Phoenix Nest
This study is planned to document, through retrospective and prospective data collection, syndrome progression in children and young adults with MPS IIIC.
This description comes directly from the study's public registry record.
Nathalie Reynes · 04 72 12 95 37 · nathalie.reynes@chu-lyon.fr
Nathalie Guffon, MD · 04 72 12 95 37 · nathalie.guffon-fouilhoux@chu-lyon.fr
Always discuss trial participation with your own doctor first.
| The University of Texas Southwestern Medical Center | Dallas, Texas, United States | Recruiting |
| Hospices Civils De Lyon | Bron, France | Recruiting |
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Source record: clinicaltrials.gov/study/NCT05825131